Savanah's Story: Haters

Friday, February 8, 2013

Haters

For those of you that read this blog and so freely feel the need to share disrespectful and hateful comments regarding Savanah and our decision as her parents to give her every opportunity to hear and live in the hearing world Please keep your comments to yourself. This blog is an opportunity for myself and Savanah to record and share our experiences living and learning in a CI world. We have trials and tribulations like everyone else and for those of you that believe that we chose this for her, Savanah wanted another implant. This was 100% her decision.

2 comments:

Anonymous said...: You are absolutely right that this decision belongs to your family. Many Deaf people feel strongly that this decision may have not been made with as open mind, which is why there are disrespectful comments. Deaf people are tired of people who can hear making decisions on behalf of Deaf people for over 100 years, that it is more important to HEAR, rather than seeing us as WHOLE people. We are trying to let you know that we are just fine the way we are! Now, we are seeing on your website pictures of your daughter with huge bandages on her head, then a big "machine" on her head (in our view, mind you) - which emphasizes the importance of HEARING... the majority of Deaf people are wondering why people who can hear cannot accept and love Deaf people for the way we are?
Thank you for "listening" to us, for a change. :); February 8, 2013 at 11:19 AM
mervynjames224 said...: It is sad, but apart from a very sad loony fringe of deaf people, most of us wish you and yours good luck and respect what is your decision, no-one else's. Such 'haters' bring deaf people into disrepute, we don't support them.; February 8, 2013 at 12:03 PM

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CMV, Hearing loss and Cochlear Implants

Some of you who have read our family blog are already familiar with Savanah's story. But I decided to start an entirely different blog dedicated to Savanah's journey. Her triumphs, challenges and this wonderful adventure we are all on together. Savanah failed her newborn hearing screening when she was born. We were told that she had fluid still in her ears since she was two weeks early. I brought her back to be re-tested six weeks later, and she failed again. I was told she was deaf and I was completely devastated. We have no hearing loss in our family and so she was tested through a blood test for many different things that could have caused deafness. It took several weeks for the results to come back. I had this perfect little baby who might have something wrong with her. The test that we had to wait on was called the "TORCH" test. The letters in it stands for a few common viruses and illnesses that cause deafness and the "C" stands for cytomegalovirus. Most of us have had this virus which is in the herpes family, but when contracted during pregnancy if you have never had it before can cause deafness, blindness, seizures, brain calcifications and learning disabilities and even death. When her results came back positive with this virus, our entire summer with our brand new Savanah consisted of many different doctor appointments. Traveling to Primarys, the U, ENT's, audiologists etc. It was extrememly exhausting, particularly because there was so much unknown regarding cytomegalovirus. We learned from a neurologist at the U that she would continue to shed the virus through her urine until she was about six months old and that particuarly children who had never had the virus could become infected. We had to take many precautions to make sure that did not happen.

At the six month mark Savanah recieved a hearing aid in Sept. of 04 and after a year, we noticed she was making very little progress with her speech. I started looking into alternative answers to help her to hear. We were learning sign langage as a family but it was difficut for some members of our family to learn and Savanah really wasn't very interested in signing. I wanted people to be able to comunicate with Savanah and have relationships with her. We decided a cochlear implant would be awesome and allow her to hear like a normal individual when on. Savanah recieved the cochlear implant surgery on April 13, 2007. It was such a wonderful day, the start to something big.The surgery took about an hour and a half. She recovered beautifully. She was riding her bike later that day. The incision was rather long and very easy to take care of. She was just like any other 3 year old during the recovery until she could be activated. She was activated on May 20, 2007 and since then has been a hearing girl when it is on. I highly encourage everyone who reads this blog to research cochlear implants and learn more about them. I have added some links below. Savanah has attended school through Utah Schools for the Deaf for three years. She is now catching up to her appropriate age for language and is a thriving, healthy and happy eight-year old. We are so proud of her everyday! She is mainstreaming 100% in our neighborhood school. She is on grade-level with her third grade class and loves to learn! She is a wonderful reader and always gets PERFECT scores on her spelling.

She just recently received her second cochlear implant, she was implanted on January 9th, 2013 at the University of Utah by Dr. Shelton again. The surgery went smooth and recovered quickly. She was activated on January 20th, 2013 and has absolutely loved having a second implant. She now wears two BRAND NEW N5 processors from Cochlear.